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Genetics ‘stuff’ might have died somewhat with the virtual unopposed passage of Clause 14/4/9 of the HFE Bill through UK Parliament and burn out on the part of those of us who have spent so much time and emotional energy trying to bring to public awareness the consequences of the Bill. But it looks like [...]...
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This report appeared in the Daily Telegraph today.
It is a positive report in so many ways, as it demonstrates what we already know: pressure from activists (you see, pressure politics DOES work!!) has actually forced the Department of Health into a climbdown (though whether it will find its way to Parliament is a different matter).
I [...]...
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This post is coming somewhat a few days after the event of 9th April, but better late than never I hope!
I have taken a jolt from the events surrounding the fact that one person at the event was attacked by a couple of others (more on that later): that is not a nice feeling when [...]...
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Text message from a friend today:
“Today my taxi driver asked me about my work, so I told him about the Bill, and his immediate response was, without me declaring my position on it all was ‘Isn’t that all a bit Adolf Hitler?’ and we went on from there. If it is so obvious to ‘the [...]...
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Today is five years to the day that BSL was finally acknowledged (although it’s down as being ‘recognised’ in the official statement I don’t buy it) by the UK governement.
Let me be clear. Deaf people should celebrate because it wouldn’t have happened without the action of people up and down the country: the marches, the [...]...
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Its been one crazy week, with the media having gone barmy for the Deaf genetics story; it has probably been covered by nearly all newspapers, and loads more radio stations. Give it a few more days and the entire UK radio network will be complete! Oh, the irony, radio, the most inaccessible media of the [...]...
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Suddenly there’s a lot of news coverage over here in UK on issues relating to Deaf issues.
It began with this report in the Sunday’s (9/3/0 Observer, which had a general news focus on the HFE Bill. The article was centred on Tomato Lichy and Paula Garfield; in the printed version it shows a [...]...
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For some time now it has been known that Islington Deaf Campaign (IDC) are organising a march through the centre of London ‘to stop remove deaf gene’. From their website it is clear that their campaign has arisen as a result of the HFEB bill.
They are to be congratulated on that. A march will [...]...
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In addition to research on attitudes to genetics there are two other projects currently being worked on at Heriot Watt.
The first is subtitling; there has been very little done into how deaf and hard of hearing people read subtitles, what they think of it, and what styles and types they prefer. A guy at Heriot-Watt, [...]...
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Taking a break from research in the national library in Edinburgh, I was reading a copy of the Scottish Daily Mail (as you do) over a cappuccino in a nearby café. (Please note, I do not *buy* the Mail, it was already in the café.) Skimming the pages and looking for interesting [...]...
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Here are some further links on HFEB Bill you might like to see:
http://breeze01.uclan.ac.uk/eugenics/ ‘See Hear’ on the Bill, for our international friends! with big big thanks to Clark
http://www.bionews.org.uk/commentary.lasso?storyid=3697 Supportive article written by Heather Bradshaw, who is based at University of Bristol; thanks to Anna for bringing to my attention.
http://www.gsdnet.org.uk/content/events/ The [...]...
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Kindly notified by a friend that BBC See Hear interview can be seen here by UK people
http://www.bbc.co.uk/iplayer/page/item/b008vrdm.shtml?q=see+hear&start=1&scope=iplayersearch&version_pid=b008vr95
Tiger...
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In this month’s British Deaf News (a regular column author), and also on a campaign blog, there is information about the Bill which is mistaken and needs to be urgently clarified.
The Bill does NOT authorise the removal of a deaf gene from an embryo, and neither does it ban deaf genes or embryo’s completely, either [...]...
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Annoyed with the way my See Hear interview had been conducted (see previous entry) I decided to complain. It had been that bad I was considering withdrawing from it.
Now, let me make a few comments about the nature of a ‘complaint’ from my point of view. It can be quite a positive thing [...]...
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What an experience! If anyone enjoys chaos, argument, stress, this was one to crave. On Thursday 17th January I was interviewed on See Hear as a representative from the Stop Eugenics campaign.
I was given the questions that would be asked, sent to me the day before by the producer, and did a little [...]...
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There is this brilliant article in the Guardian today by Cathy Heffernan entitled Being deaf has one big advantage when you’re travelling abroad - it breaks down all the barriers. Her experience certainly mirrors mine re: travelling to places like South America and the Far East.
Go read!...
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What kickstarted it all? Click this link to see the post by Grumpy Old Deafies which outlines the Clause being referred to.
A StopEugenics website was created and a e-group set up. The Sunday Times asked for further information on the campaign and wrote up an article entitled Deaf Demand Right to Designer deaf [...]...
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The BSL translation of my PhD is complete, less than one year after the confirmation of the award!
It is now in editing stage. I’m immensely proud to have got it done, and very well pleased with Tessa Padden who has worked hard on it.
Questions might be asked as to why I did not do [...]...
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The purpose of setting up this blog urgently has come following the discovery of Clause 14/4/9 of the HFEB, currently undergoing its third reading in the House of Lords.
The Bill relates to unborn embryo’s at IVF stage but is already demonstrating appalling prevailing attitudes towards Deaf people in our society. The media has been [...]...
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I have set up this blog to record my involvement and engagement with academic and political work. It is impossible to separate the two.
It’ll be personal: stuff I write and anything that is published (links will be given where at all possible) and my views and rants on things happening either to me or [...]...